Over the past several years, I have been fortunate to be able to deliver a number of talks at conferences and events. Most of these talks have been on my current domain familiarity, which is patient-powered research, through my work with Crohnology and adjacent projects. Being a patient, an entrepreneur bringing together patients, and a technologist has enabled me to speak to many different audiences about what is possible in the world of truly patient-centered medicine, enabled by technology.
Many of my talks are about telling vividly the story of Crohnology from idea to conception, the research we’ve been able to do so far, and a look into the future. Sometimes I’ll tell stories from my patient experience trying different treatments for my condition, and how that influence the build-out a scalable system for all patients to contribute to the world’s collective knowledge.
People describe many of my talks as passionate and powerful. Wherever I can, I work to back up emotional narrative with data. Audience sizes have ranged from small working groups to three hundred professionals.
If you are interested, you can find contact information for me to inquire about speaking on the contact page.
2013 - Crohnology: from Idea to Major Research Partnerships
2011 - The Debut of Crohnology
|Apr 30||San Francisco, CA||"Patient Mavericks" on Clinical Innovation that Drives Loyalty & Growth||CXO Roundtable|
|Mar 22||Boston, MA||Improving the Patient Experience||GI (Gastroenterology) Roundtable||Park Plaza Hotel|
|Feb 10||San Francisco, CA||The Story of Crohnology||Molecular Med Tri-con||Moscone Center|
|Dec 6-8||Cambridge, MA||Tim O’Reilly’s Health Foo||Microsoft New England Research & Development Center|
|Oct 25||Boston, MA||Citizen Created Health Data Governance & Interoperability||Health Data Governance Workshop|
|Sep 16||Philadelphia, PA||Reaching Patients through Social Media||ePatient Connections Conference||Loews Hotel|
|Aug 9||San Francisco, CA||How My Healthcare Experience Inspired Crohnology||Healthcare Innovation Summit||The W Hotel|
|May 8||Stanford, CA||The Future of Mobile Health||Stanford Medicine Course||Stanford University|
|Apr 22||Orlando, FL||Patient Centricity 101: The Future of Clinical Trials||Partnerships in Clinical Trials Conference||Orlando World Center Marriott|
|Mar 21||Philadelphia, PA||Panel on Social Media & Clinical Trials||Clinical Research Operations & W.N. Conference||Loews Hotel|
|Feb 8||Mountain View, CA||The Story of Crohnology||FutureMed||Singularity University|
|Oct 26||Boston, MA||Combating Today’s Healthcare with Peer-to-Peer Solutions||Connected Health Symposium||Park Plaza Hotel|
|Sept 2||Stanford, CA||Influential People on My E-Patient Journey||Medicine X Conference||La Ki Shing Center|
|Sept 1||Stanford, CA||Making Self Tracking Mainstream||Medicine X Conference||La Ki Shing Center|
|June 26||San Francisco, CA||The Patient Revolution: How Patients will take back Medicine||Digital Pharma West||Parc 55 Hotel|
|May 8||San Francisco, CA||The Role of Social Media in Clinical Trials||American Association of Medical Colleges Annual Meeting||Moscone Center|
|Feb 8||Mountain View, CA||Peer-to-Peer Medicine||FutureMed||Singularity University|
|Nov 4||Los Angeles, CA||Social Health||Blog World Expo||Los Angeles Convention Center|
|Sept 1||Stanford, CA||Starting Crohnology||Medicine 2.0 Conference||La Ki Shing Center|
|May 28||Mountain View, CA||Taking Pig Whipworm for Crohn’s||Quantified Self Conference||Computer History Museum|
I’ve been fortunate to be interviewed on some radio broadcasts on health technology. Here are a couple recordings.
|Date||Radio Show||Length||Start Time|
|2013 Apr||Happtique: Platform Design with the User in Mind||11min||20:28|
|2013 Jan||Interview with Steve Wright of the SCD Lifestyle Solution||45min||00:45|
Coverage in Documentaries
Sean has been shown in film to international audiences and is a subject of a couple upcoming documentaries. “In Our Own Hands” is a documentary by Gabriella Rosen Kellerman on how technology is democratizing medicine, by enabling patients to become active contributors towards research for their own condition. “WANTED: Crohn’s End” is a film by Reid Bryant Kimball on the extreme (often self-administered) treatments that patients living with Crohn’s will do when nothing else is working. And a Stanford Medicine video profile on Sean has been shown at international medical conferences.